Friday, June 06, 2014
Pregnancy and information overload
A non-law (although sort of policy) post: Yesterday's Times published "The T.M.I. Pregnancy", on the drawbacks of the wealth of available pre-natal information. The author's daughter-in-law went through a tense pregnancy in which various tests suggested possible problems (including small size, low birthweight, and a short longbone). While obviously beneficial, the extra information that is now available makes the whole experience nerve-racking.
Nine years later, I can sympathize.
Like the author's children, we did the series of genetic tests targeted for Ashkenazi Jews (our O.B. called it the "Jewish Panel") and waited anxiously for the results. The first ultrasound detected an ecogenic focus, a calcium deposit on the developing heart and a soft possible indicator of Down Syndrome; more anxiety and a long weekend waiting for the results of other tests for Down (all were negative--and the focus ultimately disappeared, although not for awhile, so my wife still was slightly worried). Then the doctors were concerned about fetal size (my mother-in-law and sister-in-law both carried very small), which meant weekly ultrasounds for the final six weeks of the pregnancy. At the last ultrasound, 2 1/2 weeks before the due date, they became concerned about size and amniotic fluid and recommended immediate delivery (I made the mistake of reading the report as we drove back to the O.B.). While in the hospital and hooked to the fetal heart-rate monitor (the machine that goes ping), the fetal heart rate tumbled, prompting the doctor to recommend--and us quickly to accept (my precise words were "Get her out of there")--an immediate C-Section (the doctor insisted it was not emergent, but a non-emergency C-Section is like minor surgery--it is what happens to somone else). Our daughter was small but within range and just fine.
It's a bad combination, really--lots of scientific and medical information, but nothing you can know in the moment and nothing you can do if the information is negative, other than wait, hope, and pray.